Ben Werdmuller·Sep 21, 2011 Building a responsible online community for pulmonary fibrosis: real names won't cut it here
In my spare time, I'm building an independent community for idiopathic pulmonary fibrosis (IPF) researchers, doctors, sufferers and their families. IPF is a degenerative lung disease which builds up scar tissue over time, restricting the patient's ability to breathe. It's generally fatal and has no cure. My idea is to promote the discussion of the facts behind the illness, and approaches that have worked for different people. (Even things like, what's the best oxygen generator?)
My aim is to reWeb·anonymity
