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Slighe Gu Slàinte

Slighe Gu Slàinte

@slighe-gu-slainte.bsky.social0readers7posts13d ago

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Received a letter from my consultant after my colonoscopy. For some reason, the team have decided not to offer Infliximab, because I had to stop treatment due to surgery. Instead, they are offering Adalimumab, with which I am unfamiliar.Again, there is reference to painkillers, with some options mentioned, but no idea as to when these are to be prescribed.I've also received an appointment with the Dietetics department at the local hospital. I have no idea if this is in relation to my Crohn's or ...

Crohn'sSlàinte

Everyone who has ever had a colonoscopy or sigmoidoscopy knows that the bowel prep you have to take up to 48 hours beforehand is the worst part of the whole process. You basically don't leave the bathroom for 24 hours. Hell, I've even slept (well, dozed) on my bathroom floor before. I have a colonoscopy on Monday. This means a countdown of seven days, staring with a low fibre diet, which also makes my diabetes worse. Unfortunately, I already had a bad case of diarrhoea and incontinence this week...

Tuesday was my pre-operative assessment. Not had this as an outpatient before, so didn't realise it involved an ECG, blood tests and a 45-minute interview. Luckily, my new tumbler keeps water cold enough that I have increased my fluid intake, so the blood test was taken from my arm, and it was an easy draw.Thanks to some friends, I didn't have to navigate the buses, etc., and rocked up early. It was all done so quickly, thankfully, as I had only managed two hours' sleep that night. Afterwards, m...

What to do when you can't eat

Another night of pain and diarrhoea kept me awake. Rather than do something utterly mind-numbing despite overwhelming tiredness, I decided to distract myself somewhat. "How?" you ask. By transcribing £1 recipes from the YouTube channel, Wearywolf Adventures.Most recipes I have saved come from groups for Diabetics or IBD sufferers. Despite using bookmarks, they somehow disappear, so I copy/paste them into a Canva template and save them to my drives to sync with my phone. When I cook, I have the p...

It's a childish title inspired by this app's creator. It is also what I have been dealing with an excess of these past 48 hours. I've literally only taken water on board, as any and all food is exiting faster than it is being consumed. I've had pain so bad that I've been taking painkillers, significant blood loss with every expulsion, and the inevitable lack of sleep as I am held captive in the bathroom. I'm beyond tired, hungry and fed up.

Once again, sleep has eluded me. Just 4h 40m and I'm wide awake.I've been battling this particular beast since childhood. My sibling has had the same issue since childhood, and we frequently swap ideas. Melatonin sometimes works, but not always, and it's not a long-term solution. I've tried everything over the years. Sleeping pills, which left me feeling like I hadn't slept at all, put me off being medicated.As I also struggle with fatigue, when you add a lack of quality sleep, it's (almost) imp...

Mu Dhéidhinn Slighe Gu Slàinte

As this is a micro-blogging site, which has few users, I may just use it to vent about what's happening on my journey to health, i.e. Slighe gu Slàinte.I suffer from multiple chronic conditions. Some days I'm fine, sometimes all are kicking me around, but mostly only one is having an impact. I never know which it's going to be, and the situation can change from minute to minute, hour to hour, etc. I'm struggling to get my health back on track, but it feels like I'm losing the battle most of the ...

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